Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. This year, our focus is equity. Everyone deserves equitable opportunities and access to health care but people living with a rare disease are more likely to experience treatment inequality, misdiagnosis […]
Invisible Work Day – 3 April
Invisible work, it counts! In 2001, AFEAS in Canada set up the invisible work day and ever since, throughout the world, the first Tuesday of April has become a symbolic day. What is invisible work? Invisible work, unpaid, consists of all of the work done within the family and voluntary […]
World Hospice and Palliative Care Day – 14 October
The Worldwide Hospice Palliative Care Alliance (WHPCA) has announced the theme of this year’s World Hospice and Palliative Care Day and Voices for Hospices. The theme is: Universal Health Coverage and Palliative Care: Don’t leave those suffering behind! World Hospice and Palliative Care Day is the global day of action […]
International Day of Invisible Work – 5 April
Day of Invisible Work: « Let’s make it visible! » Things change. No more than 50-70 years ago, being a good mother meant to stay with your children at home, look after them, help your husband – the breadwinner – to live a peaceful life after a hard day’s work: ladies were […]