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Rare Disease Day – 28 February 2023

28 février 2023
Nicole Gregoire
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Catégories: Anglophones et anglophiles
Mots-clés: awareness, carers, change, equity, opportunities, rare diseases

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

This year, our focus is equity. Everyone deserves equitable opportunities and access to health care but people living with a rare disease are more likely to experience treatment inequality, misdiagnosis and isolation. For #RareDiseaseDay 2023 on February 28, let’s light up in solidarity with over 300 million people living with a rare condition and share our colours!

Source: Text & Image: https://www.rarediseaseday.org/

Invisible Work Day – 3 April

3 avril 2018
Nicole Gregoire
Aucun commentaire
Catégories: Anglophones et anglophiles
Mots-clés: AFEAS, carers, contribution, development, hospitals, invisible work, recognition, schools, status, support, survival, voluntary work

Invisible work, it counts!

In 2001, AFEAS in Canada set up the invisible work day and ever since, throughout the world, the first Tuesday of April has become a symbolic day.

What is invisible work? Invisible work, unpaid, consists of all of the work done within the family and voluntary work done in the community, whatever the status of the person.

How to make invisible work visible? The recognition of the value of invisible work will improve the status of those who do it, generally women as mother and carers, without forgetting all forms of voluntary work in schools, hospitals, old people’s homes, sports clubs and various associations…

In 2010, it’s difficult to understand the lack of recognition and support for men and women whose contribution to their family and the community is judged essential for its development and survival? How can we mark this day?

Source: Text: cms.horus.be/ Image: YouTube

 

World Hospice and Palliative Care Day – 14 October

14 octobre 2017
Nicole Gregoire
Aucun commentaire
Catégories: Anglophones et anglophiles
Mots-clés: carers, destitution, financial burden, health, illness, palliative care, poverty, suffering, UHC

The Worldwide Hospice Palliative Care Alliance (WHPCA) has announced the theme of this year’s World Hospice and Palliative Care Day and Voices for Hospices. The theme is: Universal Health Coverage and Palliative Care: Don’t leave those suffering behind!

World Hospice and Palliative Care Day is the global day of action for hospice and palliative care. It is taking place this year on 14 October 2017 to raise awareness of palliative care as a crucial, defining part of Universal Health Coverage (UHC).

The sub-theme is: CARE, COUNT, COST.

CARE
It isn’t UHC without universal access to palliative care. Palliative care is an essential, defining part of Universal Health Coverage (promotive, preventive, curative, rehabilitative and palliative health services).

UHC means that all people and communities can use the promotive, preventive, curative, rehabilitative and palliative health services they need. We must bring UHC including palliative care to those who need it most.

COUNT
What gets measured gets done. We need to measure palliative care as part of UHC. 40 million people need palliative care annually including 20 million at the end of life. In 42% of the world’s countries there is ZERO availability of palliative care.

COST
No one should face destitution and poverty when they get sick. Paying for costly treatment or travel to treatment and care services as well as loss of income by the person who is ill or their carers can lead to financial risk. Palliative care can reduce the financial burden driven by serious chronic and life-limiting illness.

Source: Text: whpca.org  Image: International drug Policy Consortium

International Day of Invisible Work – 5 April

5 avril 2017
Nicole Gregoire
Aucun commentaire
Catégories: Anglophones et anglophiles
Mots-clés: carers, Children, drug trade, environment, family, mothers, parents, prostitution, volunteers

Day of Invisible Work: « Let’s make it visible! »

Things change. No more than 50-70 years ago, being a good mother meant to stay with your children at home, look after them, help your husband – the breadwinner – to live a peaceful life after a hard day’s work: ladies were supposed to be the « angels of the house », caring for the family.

Today if you say you are a housewife you certainly get as a comment: « Oh, so you don’t work! » And this is not only a sexist remark, good for ladies alone. Unpaid work is held in very low esteem in our society, at home and outside.

There is no sign of home caring work in GDP anywhere in Europe, although recently GDP includes prostitution and drug trade, and no sign either of the silent work of volunteers that take care of the poor, the ill, the refugees, those that help our children practice sports, or help sustaining the environment and the treasures of art in our countries. Still, if it is unpaid, if it is done just because you care, if it is invisible – it seems not to exist. And it can be ignored by the politics, by social security and administration.

In order to make the caring work of millions of people visible and appreciated, an initiative was started in Canada and then brought to Europe by FEFAF, the European Federation of Parents and Carers at Home, to celebrate the first Tuesday of April as the International Day of Invisible Work.

Source: Text: elfac   Image: bimcal.com