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World Vitiligo Day – 25 June

25 juin 2023
Nicole Gregoire
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Catégories: Anglophones et anglophiles
Mots-clés: bullying, community, disability, forgotten disease, non-profit organizations, psychological trauma, social neglect

 June 25th is a day of celebration of our lives and our community. The first World Vitiligo Day was held in 2011 and has since become an annual, global event. The campaign was born from the determination of non-profit organizations VR Foundation (USA) and VITSAF (Nigeria), and their supporters across the world, to bring this “forgotten” disease into the public eye, and to shine a light on challenges faced by those suffering from vitiligo.

Over the years, its purpose has broadened from raising awareness of vitiligo to include recognition of the bullying, social neglect, psychological trauma and disability of millions of people affected by vitiligo.

We want June 25th to be recognized by the United Nations as World Vitiligo Day. You can help us by signing our petition to the UN Secretary-General – read it below and make sure you go to www.25June.org and add your name to the 500,000+ who have already signed.

A BRIEF HISTORY

The first World Vitiligo Day was held in 2011 and has since become an annual, global event. The campaign was born from the determination of non-profit organizations VR Foundation (USA) and VITSAF (Nigeria), and their supporters across the world, to bring this skin disease into the public eye, and to shine a light on challenges faced by those suffering from vitiligo.

 

Source: Text & Image: https://vrfoundation.org/   

International Albinism Awareness Day – 13 June

13 juin 2018
Nicole Gregoire
Aucun commentaire
Catégories: Anglophones et anglophiles
Mots-clés: awareness, bullying, dignity, discrimination, genetic, murder, mutilations, persécution, pigmentation, rights of persons, security, Tanzania, torture

June 13 is International Albinism Awareness Day. It is a UN effort to stop the brutalities against people with albinism.

Genetic Condition
Albinism is a genetic condition resulting in little or no pigmentation in the skin, hair, and eyes. In several cultures around the world, and particularly in many African countries, people with albinism live in constant fear of murder. Others experience severe discrimination and bullying.

Murders and Mutilations
Hundreds of albinos have been brutally murdered and mutilated in African countries in the past decades. Local superstitions claim their body parts can bring luck and prosperity. Another widespread rumor is that albinos are evil spirits.

The country with the highest percentage of albinos is believed to be Tanzania. In 2013, an independent documentary called “In the Shadow of the Sun” was released. The film by director Harry Freeland tells the story of Josephat Torner from Tanzania, who has albinism. Together, they spent years traveling around Tanzania to spread information about the widely misunderstood disorder.

The documentary, along with several other films, have been powerful tools in the fight against persecution of people with albinism, which is sometimes abbreviated PWA.

The Right to Dignity
International Albinism Awareness Day was adopted by the UN General Assembly on December 18, 2014. The resolution “encourages UN Member States to continue their efforts to protect and preserve the rights of persons with albinism to life, dignity and security, as well as their right not to be subject to torture and cruel, inhuman or degrading treatment or punishment, and to continue their efforts to ensure equal access for persons with albinism to employment, education, justice and the enjoyment of the highest attainable standard of health.”

Source: Text: timeanddate.com Image: www.albinism.org